In the moment

I needed to give myself a bit of break from the online world. I had to reset and refresh.  Truth is, I did log in once in awhile- but I wasn't as engaged in the inner workings of the online world. Instead, I put the phone aside and soaked in the moments of reality after …

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MegaCon 2018

We made it to MegaCon! Going with family and friends made for so many priceless moments. I loved seeing the kids experience this with family. The memories gained from the people we went with left a deep imprint in my sentimental soul.  We browsed aisles for "fan"tastic artwork, plushies, pins, Funko Pop, and patches. The floor …

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May 6th- World Moyamoya Day

💙Moyamoya is a rare brain disorder which effects the arteries in your brain. Blood flow is effected. When blood flow is effected too long those with Moyamoya may suffer TIA's, strokes, siezures and even death. Would you be willing to wear blue 💙 on Saturday, May 6th and other days throughout May to share awareness …

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What’s Our Story? Find out…

Usually when I visit an unfamiliar place, my mind races with questions demanding an answer faster than I can provide. I hope that my aimless attempt at reason can somehow string the information together into data I can understand. Visiting a new blog can sometimes feel like that. The veterans know what to do, know what to expect, and know where …

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Top 3 Reasons I Choose to Blog

If blogging takes up a lot of time and effort, why even blog?  Gosh, good question! Do you want the short version or the long version?  Would  you prefer the chronological history explaining why I choose to blog, or should I jump around from past to present to explain it? It changes. ... I suppose I could start with …

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How To Deal When You Have An Incurable Disease

I was 25 years old when I was told that I had Moyamoya. What's that? It's an incurable disease that limits the blood flow in the brain often times causing a stroke for those who are diagnosed. THAT'S what happened to me. 3 weeks prior to my stroke I gave birth to a beautiful baby …

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