Rare Disease Day: Joubert Syndrome

I came to know about Joubert Syndrome through a friend. I followed her journey silently through social media. I often rejoiced and felt her frustration through the screen. I never REALIZED that for as long as I followed her story… her family was on a journey to find answers themselves. There are so many like…

Rare Disease Day 2017

Today is Rare Disease Day! The purpose of this day is to make others in our community (including those in the medical field and policy makers)  be aware of the importance of research for EVERYONE. The more we know, the more we can detect and treat these diseases FASTER and more efficiently. It breaks my…

3 Easy Going Outfit Ideas

3 Easy Going Outfit Ideas Give me a good pair of converse, vintage tee, and a pair of pants that doesn’t squeeze the life out of you… and I’m good to go! Here’s a few ways to freshen up that look without having to outdo yourself. Three things to consider: 1. Cost effective – Most of…

The Difficult Thing No One Talks About When You Have An Incurable Disease

I’ve been wanting to write about this for awhile. It’s a challenge to write about it without sounding off the world’s smallest violin. That’s not my goal. But, I do find it important enough to put it out there for those experiencing this disease or their family affected by it. I’ve seen others carefully share their…

Meet our fish, “L”

My oldest turns 5 on Sunday… where has the time gone?! It’s bittersweet. Part of me rejoices in the splendor of her being (which far exceeds my expectation), the other part wants to kick father time’s butt for the speedy years. I want to push and pull. It’s a bit painful for me because she’s…

Valentine’s Day Outfit Inspiration

Happy Valentine’s Day! Needing some outfit inspiration for that hot date? The color palette and textures of this outfit will make you swooooon! At least, I know I did when my husband walked out wearing this Valentine’s Day outfit ❤ You know it’s love when you’re better half can still give you butterflies. “It wasn’t love at first…

Loot Anime January Unboxing: D

So, I’ve failed to post our unboxing experience with Loot Anime in the last couple of months. I’m sorryyy!! They’ve been great boxes, by the way! This is also one of the biggest reasons I end up forgetting to do the unboxing for our Loot Anime. The collectibles they send in the box has a…

Gamer Block January Unboxing

This unboxing came at a crucial time. I’ve been shipwrecked for weeks and this box pulled me right out of the chaos of adulting. February’s been kicking my butt! God help me, it’s only the beginning of the month. I feel like waving a little white flag in defeat… On second thought, never mind. That requires…

The Promises Kept

We had a dragon to slay and  unicorns to tame today. I need magic, not make-up. Adrenaline, not coffee. I had blood shot eyes, eye bags underneath my eye bags, and greasy hair…. Screw, Monday. While I marinated in my workload, they spent quality time completing their quest. At which point, a promised was made. It didn’t seem…