Moyamoya disease hasn’t conquered me, but it has shattered the naive belief of invinsibility. It came as a curse and as a blessing. At one point of the spectrum, I’m as fragile as a chipped Bizen Chawan. On the other, I’m as strong as the process that the chawan went through to become its unique form. I can only get better over time. The heating and cooling process are all apart of my endurnce, value, and life force. It is me.
However, unlike the chawan … I am a living, breathing, and ever changing being. Life is my fire and coolant. My actions are intentional, I am not an object used by this disease. Rather, I fight it.
Blood courses through my veins, Blood-flow that is even more important to my well-being. But, just as this is invisible to the naked eye, so it seems is the knowldege and awareness of moymoya disease. That’s how I feel sometimes.
We live in a world where news of what a celebrity might be wearing, an outcome of a game, or what some cute cat did online can travel within minutes nationwide. And yet, something that kills people simply from a misdiagnosis goes unnoticed. It’s frustrating and disheartning.
Slowly, things are moving. There’s a movement in the chaos. My inner circle is learning and sharing. Even though it seems like this big-little world is the same as it was, the ripples are growing larger! My world, with everyone I have encountered, has evolved tremendously. So, I just want to say …..THANK YOU. The impact that you have made has mended my perception and hope of finding a cure. And, like that cup…. I aged even more beautifully strong because of the decency of those around me.
***This OOTD is for those lazy days that you don’t want to put too much effort into dressing up. I opted for trousers that were more like joggers (The material was soft and it didn’t feel constricting like some trousers may feel). Typically a graphic tee can help spruce up an otherwise very laid back outfit. This time around, I opted for a jersey instead with a big printed logo to keep it from being too mundane. Throw on some shades for days you don’t want to spend too much time perfecting your make-up. To top it off, I thought the plaid was a great layering piece that worked with the casual feel of the outfit. It’s also a great color break. Slid into my favorite pair of converse, and off I go!***