GJ Tube Procedure & Broviac Replacement … FINALLY!!!!

Kairi had a GJ tube placed and replaced the broviac on her chest. It was a very long day. The girls woke up at 9am to start getting ready to head over to the hospital. When I called, I was told that, we still didn’t have a set time. By the time I made it …

Continue reading GJ Tube Procedure & Broviac Replacement … FINALLY!!!!

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Update Kairi: 11/22/13 It’s been over 8 months

It’s been over a week until my husband finally was able to come and visit us down by the hospital. I have to appreciate a man that works so hard to support his family, and on his days off goes through the grueling drive to come spend time with his wife and daughters. It was …

Continue reading Update Kairi: 11/22/13 It’s been over 8 months

TWIN packaged story

http://vimeo.com/benjaminscot/wardmiles1styear This video is so beautiful and powerful. Here’s a little window to what we have gone through as a family. For the most part, my husband and my experiences have been quantified by the post and text I send as updates. We’ve never really opened up- I have never really opened up. Aislynn and …

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Kairi Eliza

I'm ready to go home. Over 7 months in the hospital. Literally. We have been at the mercy of hospital calls, doctors who don't listen, and surgery upon surgery. Please, Kairi, let's go home. My girls have been so good through this whole time, especially my 20 month old. She brightens my day while daddy …

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Just a minute, MoyaMoya.

Just a minute, MoyaMoya. PLEASE, PLEASE, PLEASE HELP SUPPORT AND SPREAD THE NEWS. LET'S USE WORDPRESS TO FIRE THIS UP. TOO OFTEN PEOPLE ARE MISDIAGNOSED EVEN AFTER A STROKE BECAUSE DOCTORS DON'T KNOW. NEXT TIME YOU GO IN FOR A CHECKUP ASK YOUR NURSE OR DOCTOR IF THEY KNOW WHAT MOYA MOYA DISEASE IS.Taken from …

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Because this epic man is mine and it’s his birthday….and I can blog if I want to.

HAPPY BIRTHDAY TO A TRUE FATHERHappy Birthday to my husband who selflessly supports me and our girls while we wait on Kairi to get out of the hospital. Day in and day out he works hard so that I can stay by Kairi's side. Over 7 months now and this man has not wavered. His …

Continue reading Because this epic man is mine and it’s his birthday….and I can blog if I want to.